The Digital Health Society movement has designed an ambitious research and innovation programme for health and wellbeing in Europe, enabled by key support activities and involving the EU citizens and the whole society.
Its purpose is not to define each project or initiative but to define a mission target and to describe the components of the programme to reach this goal.
The mission aims to develop a series of support activities and research & innovation projects, driving to collect the data (relevant for health purpose) of 100 million European citizens, by 2027, and make them available (under conditions) for the purposes of:
The DHS mission aims to be able to collect all data (genome, clinical, behavioural and environmental data) around each citizen ensuring the compliance with data protection regulation and security.
It also targets a free flow of these data across Europe (cross-border) and their availability for healthcare systems and research through platforms with legal and privacy principles respecting the citizens’ rights.
The EU citizens will be fully digitally connected if the communication is enabled in both senses: from the citizens to the system and the research, and from the system to the citizens in order to empower them as co-managers of their health and wellbeing.
This term doesn’t mean that the mission is only targeting healthy people, but the aim is to make healthier the citizens, e.g. preserving their health and wellbeing or managing in the best way possible their health condition or disease.
In a nutshell, the mission should enable EU citizens to live better independently from their health status.
Refers to “the health outcomes of a group of individuals, including the distribution of such outcomes within the group”.
It includes 3 components: health outcomes, patterns of health determinants, and policies and interventions that link the two.
The Population Health Management (PHM) is defined as “the organisation of and accountability for the health and healthcare needs of defined groups of people utilising proactive strategies and interventions that are coordinated, engaging, clinically meaningful, cost effective and safe”.
KLAS research and the ONC in the US (adopted also by NHS England) have developed the below 6 headers for the technical capacity and capability for population health: data aggregation, data analysis (including predictive models), care management, administrative/financial reporting, patient engagement and clinician engagement.
This concept brings together the EU definition of “personalised medicine” referring to:
“a medical model using molecular profiling for tailoring the right therapeutic strategy for the right person at the right time, and/or to determine the predisposition to disease and/or to deliver timely and targeted prevention.”
And the NHS England definition of personal health and care:
“Empowering people to have greater choice and control over the way their health and care is delivered.”
The absence of such large cohorts of citizens’ data sets is currently a challenge to develop high-level researches and ground-breaking innovations for health, taking advantages from the most advanced technologies including: